Tuesday, June 16, 2015


It's Tuesday, and Judy and I are holed up in the hotel, waiting for a call from MD that my insurance has approved the scan and I can come back. As I didnt get out of there until 4:00 yesterday, and it's noon-thirty as I type this... my money's on the scan happening tomorrow, not today.

Which is fine with me.

Because, A) We're watching Tropical Storm Bill happen outside our 3rd story window. Ten feet of rain's a lot of water, and while it hasn't all come down yet... the city's on flood warning and we'd rather not be out in that. Also, B) I've been up and about way too much over the past two days. It's been great to have a day to stay in bed and off my feet.

Also, this is the reason I'm here for six days. I know that nothing is fast or easy when it comes to getting answers. I have cable TV, a fridge full of snacks that I can eat without having to leave the room, and a Sonic that's directly across the street if I have a sudden need for a giant soda. Win/win/win.

Texas is gorgeous. The people have been awesome. Every person I interacted with in the first 24 hours here was perfectly lovely. I'm so glad that I'm here, that Houston was my #4. I don't know that they'll have a TON of options outside of what I was presented with in Arizona, and it will most likely be chemo again... but they have access to different drugs here that I might be a good candidate for.

A lot of people are asking how I'm feeling, so I'll adress that here. Right now, I feel fine. Pretty normal, actually. My body was completely wasted by the end of the day yesterday, but after a little Panda Express and 8 solid hours of sleep last night, I woke up feeling more like myself this morning. Still bone tired, but my legs aren't swollen and achey anymore, hallelujah!

Emotionally, I'm also fine. I'm sure that a lot of that is that I'm in an emotional holding cell until I can actually get more information. Four weeks ago, the 3-6 month timeline was incredibly hard to hear, much less believe. And it's not like my body actually feels any different than it did 4 weeks ago, but I've had time to sit with that information and accept this as my new reality. This doesn't mean that I'm giving up or giving in, but I am accepting that this tumor is a threat in a way that nothing else ever has been. It's wrapping itself around an organ that I can't live without, so surgery isn't an option. The doctor talked yesterday about a couple different chemos she thinks might do something. ... We'll see. She needs the scan before she can formulate a real opinion (and get a timeline for when we'd have to start), and then I'll have to make some hard decisions. But for now, I am feeling pretty good and am emotionally stable. I know it's just a lull in the storm, but since Judy's here with me and we're in a hotel, it's SORT OF like a vacation.

Of course, I'll continue to post updates as I learn anything new. Or maybe I'll just post pics of the flooded streets. Either way, check back tomorrow and there'll be something here.

1 comment:

Genevra said...

Well, anyone I've known that has lived in Texas has always loved it and from what you describe with all that greenery and how friendly people are I can understand why people love living there. Thank you for the daily updates. I love you Laurie!